Don’t Take Meniere’s Disease For Granted

This post was written by admin on August 18, 2009
Posted Under: Learn from my bad Meniere's experience

I have just posted the 4th part of my story (click on the tab at the top of the page Meniere’s Disease Story…info) In this post I talk about the connections with Meniere’s Disease and sodium, alcohol, stress, vertigo, brain fog and exhaustion. All things familiar to people who have Menieres

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Reader Comments

I have been diagnosed with Menieres and have felt symptoms for about 6 months. Like all of the posts I have been on Meclizine and a diuretic along with an occational valium once an attack is under way. I am very frustrated because the attacks have no rhyme or reason as why they start. I am on a strick low salt diet and exercise as much as possible but need encouragement from all of you because I am only 39 and do not want to live the rest of my life suffering. If anyone has tried something that may relieve the vertigo attacks I would be very greatful. My doctor did’nt seem intersted. Thanks in advance

#1 
Written By dfad on September 8th, 2009 @ 4:17 pm

I know where you are coming from…After about a million test i was told it was meniere’s about a year ago. After the attackes usually about a month or so I would start to feel ok (some days even normal)After a really bad attack I had in june not a day has gone by where I felt normal. Tried a new dr who wants to treat it like vestibular migraines. but after about a month just had another attack..went in the next morning and the new dr gave me more meds to try…including one for panic attacks (which is what he thought i had i guess) Why is it so hard to find a dr who really believes something is wrong. Anyone know what else we can try…meclazine doesnt help me and i am on a low sodium diet. was on a dieretic until this dr took me off it. I am only 35 and really need to beleive there is hope out there yet

#2 
Written By Kara on November 28th, 2009 @ 11:16 pm

Hi dfad and Kara,

Obviously I would recommend trying the supplements we all use. The vast majority of people with Menieres disease who try them live symptom free…….including me of course :-) Have a look at the main Menieres Help website for info here.

#3 
Written By admin on December 2nd, 2009 @ 2:04 am

I was diagnose several years ago with Menieres Disease, I was a relief, finally a Doctor who understood me. But I don’t have insurance and can not afford to go and see him not that I have allot of hope of relief anyway. Vertigo comes and goes, I never know when that will hit me. But the ringing in my ears is extremely high. The ringing never stops day and night. Those around me do not understand they can not believe it. I have talking about it, they just dont understand. I don’t think I can’t hear I just think I can’t hear certain sounds they just blend into the ringing in my ears.

#4 
Written By Ellen on March 25th, 2010 @ 9:30 pm

I understand everyone’s frustration. I am a physician who was diagnosed with Meniers 6 years ago. I only have had 2 flares since, but this last one started June 2010 and has been unrelenting and severe since then. The ringing in my Right ear is so severe at times 50% of the time every day that can hardly think. Hearing loss is moderately severe. I am on all the usual meds and treatment – diuretics, low salt diet, plenty of sleep, etc. I have tried vit supplements, herbal meds, accupuncture, yoga. I have read a bunch of books on it and scoured the web and read most of the major experiments on it (free on Google books). I have seen two experts ( Dr. Harris and Dr. Cueva in UCSD). They are really helpful understanding thhe disease, but have not miricle bullets. bottom line – whimsicle and capricious diseae that no one truly knows why or how to cure. Probably something the Gods created to slowly torture or test people. The reason Physicians seem uninterested is that most of them do not truly understand the disease or condition. Also they find non fatal diseases that they can not fix or help subconsciously frightening.

#5 
Written By Ed on September 8th, 2010 @ 1:03 am

Hi Ed, Nice to hear the voice of a sympathetic and understanding physician when it comes to Meniere’s disease……I saw DR Harris in San Diego many years ago and he did my Endolymphatic shunt implant. Unfortunatley it wasn’t successful in my case. Luckily I started the supplements you read about on this website shortly afterwards and have been well ever since.

#6 
Written By admin on October 27th, 2010 @ 8:40 am

I have just been diagnosed with severe vertigo am taking meclazine, makes me very sleepy. I have been on the internet reading about menieres syndrome. I feel very anxious about my doctors appt. today I have figured out that feeling nervous seems to bring on some ofthe simptoms. I decided to write all of them down to give to dr. one thing that I have is a symptom no one has mentioned on the net.. My head bobs and my neck feels very weak as if it can’t hold my head up so I have to lay down becase I get dizzy. has any one out there also felt this?

#7 
Written By Shirley Brown on January 31st, 2011 @ 2:18 pm

What are the supplements u all have tryed would love to know I have had menieres for about 14 years and I’m only 31 and its hard to live with I have three small children and really bad anxiety from it I don’t want to go no where I’m always in a bad mood and never get to do much with my kids cause I’m so scared it will happen if I take them out please let me know the name of the supplements.

#8 
Written By myieshia on March 11th, 2011 @ 9:46 pm

unfortunatly.. I am also feeling very much like you all said.. diagnoses in june 2011 with Meniers disease… ahhh bummer.. Im on a suppliment homoapathic meds and it seems to have helped a bit.. no dizzy spell for 2 months..then they returned a small bit at a time. The problem I have is I am still working and I cant seem to get thru a week.. I am on the 10th year of this job and i really love it.. seems there should be something to make me feel better.. whoozy all the time and just off balance. the dizzy spells made me panic also, they still do but when i get whoozy I get scared I am getting a spell and have to go home.. The ringing in my ears are the worse sometimes, and sometimes hardly notice the noise.. but does anyone know how much sodium you should have ?? I dont think I am getting enough, seems I feel bad when I really restrict my sodium..

#9 
Written By sandy on September 30th, 2011 @ 2:21 am

Question. Its been my experience that antibiotics (penicillin ie. zpak and amoxicilin) aggravate my vertigo to the point on not being able to function for months later. I am needing surgery next month and of course they want to put my on antibiotics. I am scared to death of the outcome. I do not have time to waste 6-12 months for me to recover if the antibiotics do to me what they did when the ENT regularly prescribed them to me at first menieres diagnosis. I have googled and haven’t found anyone else with relatable experiences with antibiotics. Can anyone else relate? If so, would you know any alternative to the typical antibiotics that I could take without fear?

#10 
Written By Michelle Brown on February 5th, 2012 @ 7:50 pm

Just being digonised with Meaniers Dont wish it on my worst enemy please help what is the suppliment u all talking about ?Also if anyone had any sucess stories please let me know Thanks in advance

#11 
Written By Iqbal on March 31st, 2012 @ 2:50 pm

My sentiments exactly! I wouldn’t wish this on anyone even my worst enemy…please go to here to the Menieres Help website for info on the supplements and here to find out about getting them.

#12 
Written By admin on April 4th, 2012 @ 6:38 am

Hi Michelle, Have you thought about taking a probiotic after the antibiotic to compensate and rebuild the good bacteria in your stomach?

#13 
Written By admin on April 12th, 2012 @ 2:40 pm

9 year history of Meniere’s. When I’m diligent with my diet and exercise I’m symptom free. As soon as I become too relaxed with alcohol consuption, caffeine and sodium that’s when trouble starts.
Also, I am sensitive to dehydration so lots of water is a must.
Acupuncture seems to help.
I plan to begin the supplements ASAP.
Thanks ADMIN for posting how to obtain them.

#14 
Written By Pamela on April 27th, 2012 @ 12:48 am

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