Comments on: News Flash! Meniere’s Disease DNA Testing – Looking For Causes

By: admin

admin — Sat, 12 May 2012 14:47:35 +0000

Hi Brian,

Please email us at meniereshelp@gmail.com and we will help out best we can

By: brian b

brian b — Mon, 23 Apr 2012 20:49:57 +0000

Saw audio on u tube about a guy with meniers and took supliments .what kind and where. Thank you Brian

By: carola

carola — Fri, 16 Dec 2011 05:02:53 +0000

my mom has this disease i would like to kmow what can the food can she eat or what can de diet can she make it thank you …..and what can the tea and vitamin she on medication but if ypou can help me with something else thank you

By: Lynne

Lynne — Mon, 14 Jun 2010 14:25:30 +0000

I have read the above entry. I was diagnosed last year with atypical Menier’s disease. I had two attacks of vetigo early on but none since. Does everyone with Menier’s have vertigo?
About the low salt diet. How do people “eat out” and control their salt level? We live in a rural area and drive long distances for doctors and shopping. I am not a salt person and have no trouble reducing salt when eating in.
Lynne

By: admin

admin — Mon, 31 May 2010 08:12:27 +0000

Thanks for the comment Laurie, I noticed one good point that I think people should take note of.Your doctor put you on potassium while on the diuretic. To my knowledge many doctors don’t do this, and they should. Diuretics can deplete potassium levels in the body, causing similar symptoms to meniere’s itself.

Either supplementing with potassium (as your doctor did) or making sure you eat plenty of potassium rich food such as bananas or potatoes is important.

By: Laurie Donaldson

Laurie Donaldson — Tue, 25 May 2010 05:56:10 +0000

I was diagnoised in 1980’s with Meniere’s Disease. By the time I was diagnoised my hearing had dropped to the level that the audiologist said that I was “very visual” as I was already pretty much totally deaf in my left ear and this was attacking my right. My Dr. at that time was Dr.Doby. He was an excellant Dr. He did massive testing on me and that is whom diagnoised me. He then started me on a low sodium diet of 900 mg a day, a diuretic, potassim, prednisone and due to the fact that the diuretic stripped my me of potassium I had to take a potassium sumplement and had to have my blood checked regularly. I went to having almost having no hearing to regaining all the hearing I had lost in my right ear. Then I went into remission. I went back to Dr Doby and he ended up leaving the hospital to go to another institure to do research for hearing and the staff he that worked with him went with him. After regaining my hearing I started cheating on my diet. He stated that he could understand why I started to cheat on my low sodim diet as it is difficult to stay on but warned me also. I already had begged him off my prednisone earlier and he was giving me a nasal spray with prenisone warning me if I started to get worse I would have to go back on the prednisone. I stayed in remission until the mid 2000 say about 2004 or about that time. What I should of done is immediately start watching my salt intake but I didn’t. Well what I should of done is never go off the diet. Now I am doing that I have started back on the low sodium diet as of just lately. I am consulting with my Dr to see how to proceed with the rest as I am having a hard time taking diurectics right now. I am also going to go back to a nutritional counsulor. I am taking meds to try to control the vertigo, etc. and that is Topamax also used for other issues. I currently have a dehydration problem and that is why I am having a hard time with the diurectics. I am writing this in order to help someone else as Dr. Doby saved my hearing and if I would of stuck to the program I still would have all of my hearing in my right ear and I am hoping I can recover it only time will tell. Good luck everyone and maybe this can help someone else as it did and hopefully will again work for me. Caution you must stay at 900 mg and below of salt intake which is very difficult.